You are all amazing! If we could harness your positive energy...we'd rule the world!
Spent two days in PICU - then on to 3 Tower. Pain wise, worse than last time. Poop-wise - yahoo! We outsmarted her system - got her pooping by Thursday night! She's not eating or drinking enough to keep a bird alive - but we all think we'll have better luck at home.
Sorry no updates - haven't had time to get to a computer. She hasn't been as mobile as last time.
More details, and tons of pictures later.
THANK YOU 1000 times 1000 for all the cards and letters. We have dozens upon dozens to open at home. She has only been awake enough for a few at a time while we've been in. (lots of morphine, lots of shutting down to avoid the world...) I'm going to try to come up with a way of thanking all of you. You made our hearts sing - and have given her much to look forward to as she's cooped up over the next few weeks. (again....) Its been a pretty boring summer for her - now she's actually excited about staying in!
BTW, I've been asked a lot if it was a good idea to have taken her horseback riding last week. The answer is...No! It probably wasn't. Ask me how much guilt I have about it... ;-)
Again, thank you for all the positive thoughts and prayers!! You are the reason we got her home so quickly!!!!!!!!!!!
LOVE UP TO THE MOON AND BACK!
Avalon's Grateful Family - mom Alicia, dad Nick, big sisters Aurora and Ambrosia, and little brother Anam